Sunday, February 22, 2009

Rambling thoughts

Rambling thoughts from mom today.

Yesterday morning we lost another child on the support group we are a part of because of Princess Junior. This time a beautiful little 4 year old girl left us. This is now about the fifth or sixth child that we have lost since the beginning of the year. Just one scares me but this many is terrifying.

Even before this would I get a sick feeling in the pit of my stomach when Hannah gets sick. Things like this just make it worse. Thankfully we have no illnesses going on with her right now. And no gaps in nursing coverage for a few days.

Please keep the Hayes family in your thoughts as they deal with Charlotte's leaving.

Thursday, February 19, 2009

Princess Junior update

Poor Princess Junior. I had to go to the doctor today. It was a scheduled visit. I had to get the second dose of the Hepititus A vacine. For that matter, so did Gamer Boy. So we were scheduled to get them together. I didn't really seem to think it was all that bad. I was rather relaxed, as a matter of fact. (Mom note: Her pulse was running between 95 and 110, which six months ago would have meant she was asleep!) Gamer boy, on the other hand, was not amused. He has never liked shots. Mom says that it took 3 HOURS to give him a tetnus shot when he was about 7 or 8?

One reason that he doesn't like going in for shots is that Nurse T, who did that tetanus shot, is still with the practice and remembers him well. It's a fun relationship to watch.

During one visit a couple years ago when we were in there Nurse T decided to play a trick on him. The timing worked out impeccably! She filled a 60cc syringe with dish soap and was just about to walk in the exam room when he went to go to the bathroom and opened the door. There she stood, ready to open the door herself (I told you the timing was impeccable!) They both just stood there and looked at each other. Gamer boy made the first move. He very quickly and firmly closed the door and ran to the farthest corner of the room and curled up in a ball on the floor. Needless to say Mom and Dad were just doubled over laughing like crazy.

This practice has been through a lot with us. Both with Gamer Boy's infamous shot incident, Chatty and her illnesses and following me on my medical journey. We are very grateful for their professionalism and their kindness. I don't think Mom and Dad could have found a better group of docs for all of us!

As I said earlier, today's visit was for shots. Because I don't seem to register pain "normally" the look on my face doesn't seem to change a bit when the needle goes in. That is a blessing in this instance. Gamer Boy still isn't thrilled with them but he knows the importance of getting his shots to help keep me healthy so he tolerates them. And he is very good about it. Now. He has worked past the "anything I can do to delay this" phase, through the "several false starts" phase and he can now just let them go ahead and give the shot.

Mom had them check me while we were there because Chatty has a suspected case of strep. (She went to the walk in clinic and although the quick test said no, the visual and symptom evidence said yes so that is what the docs went with.) I was extra juicy this morning and requiring more suctioning so Mom and my nurse thought it best to have it checked out while we were there.
The verdict was no strep and no flu. YEA!!!! So probably something viral if anything.

Yesterday we went to the pulmonologist. This was a follow up visit that had already been rescheduled twice because of the weather. We made it this time and got a good report there. They adjusted some of my meds. One of them is real expensive (Several
THOUSAND dollars!!!) and the pharmacy doesn't usually have it in stock so has to order it for us. We are just waiting for it to come in. And now we don't have to go back for 4-6 months unless something comes up.

Friday, February 6, 2009

Still need those recipes!

Mommy said she still needs lots of recipes. She is hoping that she can get enough together to have the cookbook done by sometime this summer. If you have special recipes please share them with Mommy! You can e-mail them to her here.

Thank you!